World Sickle Cell Awareness Day and The Bobby Engram Foundation

Engram_logo_smallThe Bobby Engram Foundation strives to provide hope, courage and 

opportunity to underprivileged children who suffer from chronic pain
that affects their lives physically or emotionally.

Imagine being a father and seeing your daughters suffer through unbearable pain. Imagine not being able to do much of anything to make the pain go away. This is what Baltimore Ravens Wide Receivers coach Bobby Engram was encountered with when his oldest daughter Bobbi was born and then when his other daughter Phoebe was born. Engram has the trait for the hereditary blood disorder known as Sickle cell. His wife Deanna also has that trait. That meant there was a 1-in-4 chance that one of their children would be born with the disease. Fortunately, his two sons Dean and Trey have not been struck with the disease.

Sickle cell disease affects the body’s red blood cells, turning the cells into the shape of a crescent moon. The abnormal shape causes the blood to clump up, which in turn causes severe pain. The severe pain is referred to as “pain crises” and causes a variety of problems that can complicate a child’s life such as hip pain, joint pain and much more.

“You’re confused. Frustrated. You’re angry. You go through this range of emotions and then you accept it,” Bobby says. “You learn and you educate yourself. It’s a tough and horrible disease to grow up with. It can be an emotional drain on everyone. This is a real thing that needs to be dealt with. There’s a lot that people don’t know about Sickle Cell disease like that it affects almost all races. It affects millions. It is the most common genetic blood disease in the country.”

The United Nations classified sickle cell anemia as “one of the most gangrenous common genetic diseases” in the world. It can lead to death. According to medical records, there are in excess of four to five million sickle cell disease patients. June 19th of every year has been designated by the United Nations as World Sickle Cell Awareness Day to increase global awareness of this painful disease and recognize it as a public health problem. Those who suffer from sickle cell have to live with chronic pain throughout their lives. Sometimes the pain is so severe that it requires being placed in the hospital and being given narcotics.

According to, the disease causes deformed red blood cells to block the blood flow in a blood vessel. As a result, oxygen and nutrients don’t reach the area that’s covered by the blood vessels. Tissue in the affected area becomes very inflamed and at times it dies. The painful condition is described “as though small heart attacks are occurring throughout the body.”

The Bobby Engram Foundation was started as a result of his daughter Bobbi’s desire to help other children that shared her pain. Engram enjoyed a long, productive career in the NFL which allowed him to be able to provide the best care for his daughter but she still had to endure the pain and suffering that sickle cell presents. The NFL was and still is a platform for Engram to raise awareness, search for a cure and help other families cope with the strains that the disease puts on them.

The fact that this idea started with a child who had a heart big enough to look past her own pain is astonishing. It clearly touched Engram. “She told me ‘I want to help. How can I help other people?’ For a kid to have that kind of insight, that was very powerful to us. Everything happens for a reason. She’s why the foundation is in existence. Sometimes kids are so honest and they have a wisdom beyond their years. She is a blessing.”

engram_seattleThe Bobby Engram Foundation has done extensive work with the Seattle community. Engram was a member of the Seattle Seahawks when the foundation was first created. His work in the Seattle community has resulted in Engram being given The Ed Block Courage Award, The Seattle Seahawks Community Man of the Year, the Home Depot NFL Neighborhood MVP Award and he has been recognized by the Washington State House and Senate for his work to help those who suffer from Sickle Cell Disease.

While in Seattle, the Bobby Engram Foundation organized walks to raise awareness for sickle cell in the Seattle area. They did trait testing to let people know if they did carry the sickle cell trait. They also did some genetic counseling with the children’s hospital and worked with the Sickle Cell Task Force of Seattle.

Another thing that the Foundation did was host charity softball games to help support the efforts of the people in the community that were already working to raise awareness and care for the kids who were suffering from sickle cell.

Engram retired from the NFL as a player in 2011 but accepted a job as an offensive assistant coach for Jim Harbaugh, who was entering his first year as an NFL head coach with the San Francisco 49ers. In 2012, Engram became the wide receivers coach for the University of Pittsburgh football team. 

The transition from player to coach caused the Bobby Engram Foundation to take a slight step back as Engram had to relocate to the East coast. While in Pittsburgh, he continued to champion his foundation’s cause by taking part in educational seminars to teach people in the Pittsburgh community about sickle cell.

The Baltimore Ravens hired Engram to be their wide receivers coach this year. Their head coach John Harbaugh is the brother of Jim, the first head coach that Engram coached with in the NFL. He knows that hiring Engram will have an impact on the Ravens because of the type of leader that Engram is. “When you combine Bobby’s NFL pedigree as a player and his coaching experience, you see why we’re excited to add him to our staff.” Harbaugh said. “He comes highly recommended, he did an outstanding job at San Francisco and Pitt. He’s an impressive person. He’ll help our offense and our receivers become better.”

Engram plans to become firmly entrenched in the Baltimore community. The Ravens certainly got a very good coach, but the Baltimore community got an even better contributor. Engram has already made plans to get the Bobby Engram Foundation rolling in the Baltimore area. “We’re in the process of revamping our website, reorganizing the donor model, fundraising and those things so that in the next year, we can do significant things in the Baltimore community.”

Bobby Engram is a man that should be a role model for young men, especially fathers. The things that he has been able to do to raise awareness for sickle cell is praise worthy. He is a part of what is good about sports. Engram saw his status as a professional athlete as an opportunity to impact lives and acted upon it. Expect more to come from the Bobby Engram Foundation. Don’t forget Thursday, June 19th is World Sickle Cell Awareness day so be sure to take a moment to share anything that you have learned about this painful disease.

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